Parenting Australia

sarah_m
I came across the little sachet when I was cleaning out my horribly neglected and full to overflowing laundry cupboard. For a moment I hesitated, torn between wanting to frame the sachet and award it a Medal of Honor, and throwing it in the bin in accordance with its expiry date.

The little sachet was what helped my baby son, and helped me maintain a tenuous hold on my sanity at a time that was so truly awful; I don’t think I can adequately articulate the experience.

My baby son, my third child suffered from silent reflux. The term is an oxymoron. More accurately is should be called: “Piercing scream reflux.”

Silent refers to refluxed material that goes up the oesophagus, but isn’t forced out of the mouth. The baby may swallow it back down or the stomach contents/stomach acids may not come up the oesophagus far enough to be swallowed. Essentially it means that whilst your baby may regurgitate part of its feed, it doesn’t actually expel the contents from its mouth, and they swirl around getting mixed up with lots of acid from the stomach and often causing intense pain in the process.

I was lucky really. Mr. Small was my third baby so I had some understanding that the distress my baby exhibited wasn’t your standard colic.

I delivered Mr. Small by c-section and he was your classic peaceful baby during our hospital stay. Retrospectively, I suspect that the pain relief medication I took at the time probably had a soporific effect on him too.

It was shortly after we arrived home the screaming began.

Mr. Small screamed before feeds, after feeds and woke up in his sleep screaming. We tilted his cot; I sat up with him for hours after feeds to no avail.

I cannot describe how soul destroying it is to have given your whole heart and soul to a little baby, and then be completely unable to console them. Fortunately I had the courage to ask for help, which for a Type A personality like me who likes everything under control was unusual.

Our pediatrician was fantastic, and with a diagnosis in hand and clutching s script and material about his condition we left his rooms feeling much better.

Unfortunately it wasn’t a straightforward run from there.

It took a while for the medication to work and we had to switch round the medications for a while until we found the best one for Mr. Small. In our case, it was little sachets that we mixed up with my breast milk and syringed into his mouth every day.

Mr. Small took the medication until he was a year old.

Based on my experience, I urge mums to make sure they ask for help if they need it. My community nurse and my GP were an invaluable support to me. Whilst I wasn’t officially diagnosed with PND at the time, my test results showed I had classic symptoms of it. It was agreed however, that it was probably caused by severe sleep deprivation. I still had a job and two older children to contend with as well as Mr. Small.

Exercise helped my fog to lift and so did the support of family and friends. Silent reflux isn’t just distressing for the baby; it affects all those involved in caring for them. The bravest, and best thing you can do, is ask for help, if you think your baby has it.
___________________________________
Sarah
Ah, the Possibilities!

9 Comments

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  1. I completely agree with your last point Sarah... asking for help is one of the best things you can do. Thanks for sharing your story!
  2. Oooh I was directed to your post via Twitter and it struck a chord as loud as a giant playing a banjo with me. Two reflux babies (not silent, your common-or-garden reflux babies, both mis-diagnosed with allergies, being 'sicky' and a variety of other ideas from a variety of health professionals, and well meaning relatives) here and I know the joy of Infant Gaviscon (other medications are available) only too well.

    Yes it takes time to work, to settle and to get the right combination but only a parent of reflux babies can truly understand the relief of a settled baby no longer in pain and distress after a long road to diagnosis.

    Funny how you forget, but then are reminded. I work with parents teaching baby massage and I have lost count of the number I have sent to their GP armed with the knowledge they need for an accurate, and quick diagnosis.

    Great post, thanks.

    Helen
  3. My greatest frustration when it comes to matters like these is when the "professionals" just refuse to listen to the lowly neurotic mother. When I had my 3rd child he suffered the same, I spent 9 months with a baby who never slept for more than 40 minutes, and then only when he was laying on my chest with me rubbing his feet. Every visit to a "professional" I was told "babies cry"... well yes, I know. I've had two others .. "not all babies are the same". Grrr. Took me about 7 to actually stand up and stamp my feet when I knew something was wrong.
  4. I dont know if this will help anyone, but so many mums seem to find relief with cranial osteopathy for this problem also.
    k
  5. Thanks for sharing Sarah. Whilst I haven't been in your shoes, your experience is pretty much identical to a very dear friend of mine. Her 3rd baby also suffered from silent reflux, and it almost pushed her to the edge emotionally. She too is a type A personality, so the feeling of not being able to 'control' the situation affected her whole family. Being a nurse, she also believed that she should be able to 'handle' the situation, and wasn't particularly eligible to seek help. In the end she did, and she now knows without this support she was a prime candidate for PND.

    Would love to hear updates on your little man :)

    Lisa :-)
  6. Same same - only this was my first baby - and despite having all the classic baby books, I never found "Back-arching SCREAMER who doesn't sleep in the day longer than 40 minutes = silent reflux". So I thought I was a bad mum and didn't want to be neurotic and take her to the doctor. Thought they'd say I was a bad mum. Second bub meant I really made sure he burped and got those air bubbles out of his tummy. They build-up over the course of the day and are huge (that's why they call it the witching hour). Kinda wish I could go back and medicate her so she was happy (bless her), but then again, my PND forced me to empathise with anyone who suffers depression. Previously I thought they were 'weak' which also added to my self-disgust. So yes, let's get 'Screamers' in the contents page of all the best baby books.
  7. This all sounds so familiar. My first daughter was a dream-the perfect baby, I couldn't ask for more as a first time mum. My second(now 6 months)appeared the same until about 7 weeks ago. Having been in and out of hospital 4 times we left frustrated only to be told "your baby looks healthy and there is nothing life threatening, there appears to be nothing wrong". The doctors however had not seen the change in personality, the screaming, arching of the back & the tears that had my 3 yo asking when were the doctors going to fix her sister's tummy and eyes. When my husband & I looked back we realised that she may have had this all along and we were not properly educated when it came to reflux. The poor thing presented with all the classic signs and continues to do so. It was only after our MHN saw her and noticed the dramatic change that we started to get some results. After many tears (both our girls and our own), we are finally getting checked into a mother baby unit hoefully with a positive outcome.
  8. What a great post. It's good to know there is information on the web educating people about silent reflux. We suffered silent reflux with our first child for seven and half months before we found a doctor who believed us. I cannot count the number of times we were told that it was behavioural and how difficult it was to live on less than three hours sleep a night. The more education there is the more people will understand and be able to diagnose it early.
  9. There is a good description of silent reflux and treatments. However there is nothing about diet; yet foods can have a major impact and I understand treatment can include dietary changes. Could you please add to this a list of foods to be avoided and those that can be safely eaten. Is it also possible to link this to recipe suggestions?
    About silent reflux

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