Parenting Australia

Allergy Angst

10 Votes

Angst isn’t a big enough word.  Anguish?  Anxiety?  Fear?  Sorrow?  A lot of words come to mind when thinking about what my son’s life threatening allergies mean to me.  After five years, I can finally add Hope to the list.

 

Five years ago we went to the allergy clinic for a routine skin prick test and came out a family forever changed.  We returned home needing to re-assess the contents of our kitchen cupboards, our fridge, our craft materials, our toys, our bath products, our creams, our shampoos, our clothing, our travel plans, our childcare plans, our home, our lifestyle…our life.

For the longest time it was hard to see beyond the allergies.  Allergies are such an omnipresent concern because they show up multiple times throughout each and every day – each time my son needs to eat or drink in fact.  We’ve been dealing with the allergies every day for five years now and I’m glad to say it does get easier.

Small steps are major victories.  The last skin prick test suggested we could try soy and fish for the first time.  Six months on, he has soy milk every day, a much wider range of food to eat, and eats fish crumbed and fried!  My goodness, haven’t those two foods opened up a whole new world.  We have actually booked an overseas holiday, his first ever, on the strength of these advancements.  It means we will be able to feed him (I won’t say easily, but easier).  Most importantly, he will travel to meet his great grandmother for the first time – all because of soy and fish.

Five years on, there are so many more allergy-free products to buy.  Today I picked up a packet of heart shaped shortbread biscuits, completely allergy-free (Orgran Premium brand, if you’re wondering).  We have faced our first five weeks of school, incident-free.  We go to the beach now and no eczema follows us home.  We host birthday parties with a completely allergy-free menu and no-one spots the difference.  

Of course I still worry.  I worry every day for my precious boy.  The day I don’t worry is the day he might get an accidental exposure.  It is a fine line between managing the anxiety of it all, and still allowing him the opportunity to enjoy the things every child should. Having a child with allergies brings some small insight into the difficulties ordinary families are faced with every day.  Perhaps this is why this happened to us, so we could have more empathy for families who are really doing it tough. Our children walk, talk, sing, dance, grow, learn, feel, hear, see etc.  Lots of kids can’t.  I understand now that there are so many parents walking amongst us who are just simply exhausted each and every day, just with the weight of everything they have to think about, let alone do. 

I look forward to the day when I don’t think about allergies at all.  But today I will embrace the immense good fortune we have to live in a community that helps us keep him safe.  And today and everyday I will celebrate the most perfect little boy I could ever dream of having as my own.

___________________________________

Mihiri Udabage is a 30-something mother of two, now feeling old enough to use terms like 30-something. She loves Sundays more than Saturdays but is grateful for both. She hates ironing. In between growing up two little citizens, Mihiri spends time working on her on-line Fair Trade and Organic business www.generationwonder.com, volunteering for global charity Room to Read, doing canteen duty at school, and entering Fun Runs she has no hope of actually running. Mihiri has a husband who thinks she is loopy but who supports her anyway. She wishes she had written Twilight but acknowledges that could never happen because she can never remember her dreams. However, Mihiri is about to enrol in a screenwriting course that will see her write a movie that will knock Twilight for a six. Mihiri continues to dream...

8 Comments

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  1. Thank you Mihiri for sharing your feelings of allergy angst, I also have a child with life threatening allergies and I feel the same anxiety and fear. I have 3 years until I will face the challenge of sending my child to school but I also appreciate our community who helps to keep our children safe. We really do appreciate all the other parents of non-allergic children helping us because food is such a common thing to share.
  2. As a mother of 2 boys with significant food allergies I can completely sympathise.

    My heart goes out to others in a similar situation.
  3. I can understand how you feel. I have a 4yo daughter who suffered from eczema since she was 3 months old. She was diagnosed with multiple food allergies - wheat, nuts, eggs, shellfish when she was 8 months old. She has to avoid citrus fruit. Later we discovered she's allergic to dog/cat dander, grass, pollens...

    Life isn't easy but i am thankful she is healthy and happy. Her eczema has improved nearly 90%. Allergies remains but easily managed. Rice and homemade soup is a big part of her diet. She understands certain foods causes her to break out and she is quite determined to avoid those foods. I am amazed by her willpower.
  4. Hi Rebecca, community is a wonderful thing. They will help you and you will help them, and importantly, all our children will be better protected. It really does take a village...
    Enjoy your before-school days, they go by way too fast..
  5. Ladies, your good spirits and positive outlook are really uplifting. Thank you for writing in
  6. I have an 11 year old daughter with multiple allergies and intolerances, getting worse as she gets older. While she had great self control as a younger child, she now struggles because she is different, and has real issues with food, eating in secret all sorts of food she knows she is not allowed. Her diet is so limited, that I can't restrict all other 4 members of the family to it, and while we are thoughtful what we eat in front of her, she still binges on food I have hidden. It is at the stage that I need to install a lock and pocket the key. I always controlled her excema and rashes when I could control what went in her mouth, but now she is older you cannot control them and she suffers terribly and misses a lot of school. We let her live life as much as she can, and try to not allow her to miss out on things, but she sabotages herself. It is certainly a lot more difficult as they get older....
  7. its nice to hear it goes get easier..2 allergy kids..one who is almost 5 and doing great now with minimal milk protein left. the otehr at 18 months..seems to be allergic to it all, fish,chicken,potato,peanuts,eggs, cashewnuts and straight milk protien..been an interesting year of resulting ulcers hernia and inflamtion in the gut. Its always nice to hear it gets better
  8. This is so true, i write a blog called nut allergy mum which is about mine and my sons life as we both have severe Nut and Peanut Allergies

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